NEWS
MENA Angelman Association launched in Dubai DUBAI, 30th August, 2023 (WAM) -- Under the honorary presidency of Sheikha Aisha bint Obaid Al Maktoum, the MENA Angelman Association, which represents the first association concerned with Angelman syndrome in the Middle East and North Africa (MENA) region, was launched. Angelman syndrome is a rare genetic disease that mainly affects the nervous system, causing developmental delay, speech impairment, and intellectual disability, in addition to behavioral disorders, movement disturbances, and epilepsy. Because of the rarity of Angelman syndrome, most healthcare providers and the majority of society have very limited knowledge about this syndrome. From here, the MENA Angelman Association set its first goal, which is to spread awareness and knowledge about this syndrome among health care providers and all segments of society, believing that raising the level of knowledge will enable the
Published on: 02 September 2023 Source: wam.ae
MENA Organization for Rare Diseases, Burjeel Holdings collaborate to expand footprint of project NADER ABU DHABI, 29th August, 2023 (WAM) -- The MENA Organization for Rare Diseases is collaborating with Burjeel Holdings on the groundbreaking initiative known as NADER (Needs Assessment and therapeutics Development for Rare diseases) to expand the footprint of the initiative across the MENA region. This innovative project is expected to revolutionize the field of early diagnosis and treatment of rare diseases in the UAE and the wider MENA region. NADER, a project that draws its name from the Arabic word for “rare,” aims to create a paradigm shift in how rare diseases are diagnosed and treated. Recently, Burjeel Holdings, one of the largest healthcare service providers in the MENA region, and BridgeBio Pharma, a leading US-based biopharmaceutical company with a focus on rare genetic diseases and cancers, have signed an agreement to launch operations from Abu Dhabi to conduct clinical tria
Published on: 12 September 2023 Source: wam.ae
MENA Organization for Rare Diseases Collaborates with Burjeel Holdings to Expand the Footprint of Project ‘NADER’ The MENA Organization for Rare Diseases is collaborating with Burjeel Holdings on the groundbreaking initiative known as NADER (Needs Assessment and therapeutics Development for Rare diseases) to expand the footprint of the initiative across the MENA region. This innovative project is expected to revolutionize the field of early diagnosis and treatment of rare diseases in the UAE and the wider MENA region. NADER, a project that draws its name from the Arabic word for “rare,” aims to create a paradigm shift in how rare diseases are diagnosed and treated. Recently, Burjeel Holdings, one of the largest healthcare service providers in the MENA region, and BridgeBio Pharma, a leading US-based biopharmaceutical company with a focus on rare genetic diseases and cancers, have signed an agreement to launch operations from Abu Dhabi to conduct clinical trials and research. Supported by th
Published on: 29 August 2023 Source: healthmagazine.ae & www.msn.com & gulftime.ae & www.emirates247.com & gulftime.ae
Launching of MENA Angelman Association Under the Honorary Presidency of Sheikha Aisha bint Obaid Al Maktoum Under the honorary presidency of Sheikha Aisha bint Obaid Al Maktoum, the MENA Angelman Association was established, which represents the first association concerned with Angelman syndrome in the Middle East and North Africa (MENA) region. Angelman syndrome is a rare genetic disease that mainly affects the nervous system, causing developmental delay, speech impairment, and intellectual disability, in addition to behavioral disorders, movement disturbances, and epilepsy. Therefore, individuals with this syndrome are people of determination. Because of the rarity of Angelman syndrome, most healthcare providers and the majority of society have very limited knowledge about this syndrome. From here, the MENA Angelman Association set its first goal, which is to spread awareness and knowledge about this syndrome among health care providers and all segments of society, believing that raisin
Published on: 24 August 2023 Source: focus.hidubai.com
MENA Organization for Rare Diseases celebrates its first anniversary The members of the MENA Organization for Rare Diseases have celebrated on 15 June 2023 the first anniversary of establishing the MENA Organization for Rare Diseases. MENA Organization for Rare Diseases was established on June 2022 in Dubai to serve and support people with rare diseases in the Middle East and North Africa (MENA) region. The organization’s goals are to educate and spread awareness about rare diseases, connect patients and healthcare provides to exchange knowledge and experience, and support people with rare diseases and their families. During the past 12 months, the MENA Organization for Rare Diseases has achieved 12 magnificent milestones: 1. The organization’s members have increased from two (the founders Ayman El-Hattab and Mais Kanan) at the time of establishment to ten members currently: Prof. Ayman El-Hattab (Founder President), Engineer Mais Kanan (
Published on: 21 June 2023
Rare Disease Support Groups: a unique online platform launched by MENA Organization for Rare Diseases to connect people involved in rare diseases MENA Organization for Rare Diseases has taken a significant step toward its mission to connect people involved in rare diseases by starting a unique online platform allowing patients and their caregivers and family members, healthcare professionals, researchers, advocates, and other people involved in rare diseases to join disease specific groups: https://connect.menararediseases.org/ This platform, the Rare Disease Support Groups, allows patients with rare diseases and their caregivers and family members to connect with others having similar diseases giving them the opportunity to freely communicate to share personal experiences, exchange knowledge, and offer valuable advice through a chat box. Furthermore, a feed box in each group allows for posting disease-specific information and announcements about available diagnostic and treatment options and the latest advancements in rese
Published on: 19 June 2023
Gilani Mobility and MENA Organization for Rare Diseases Dr. Ayman El-Hattab and Engineer Mais Kanaan, the Founders of MENA Organization for Rare Diseases, had the great pleasure to meet Engineer Ramin Gilani, the Director of Gilani Mobility, and Mr. Khaled Khateb, Dubai Brunch Manager of Gilani Mobility at Gilani Mobility facility (https://www.gilanimobility.ae/) in Dubai on 17 June 2023. Gilani Mobility is originally founded in Australia and located to Dubai in October 2022. Gilani Mobility is specialized in mobility aids and provides high-quality products/services for people of determination, covering the entire Middle East region. Gilani Mobility provides a wide range of services related to people of determination from assistive technology, mobility aid, driving solutions, transfer solutions, wheelchair accessible vehicles, car/van conversions/modifications, renting/hiring services, healthcare products, and home/building modificatio
Published on: 19 June 2023
Illuminating the Future: Non-Invasive Perinatal Testing (NIPT) Forum is endorsed by MENA Organization for Rare Diseases MENA Organization for Rare Diseases endorses the forum Illuminating the Future: Non-Invasive Perinatal Testing (NIPT) that will take place in Jumeirah Emirates Tower in Dubai on 21 and 22 June 2023. The first day (21 June 2023) is specifically designed to provide an educational journey into the field of genetics, with a special emphasis on Non-Invasive Perinatal Testing (NIPT). The objectives are to explore the immense potential of genomics in identifying and intervening in genetic rare diseases at their earliest stages during pregnancies. The main goal is to expand knowledge and provide valuable insights into this ground-breaking approach to prenatal screening. The second day forum (22 June 2023) is directed to the health insurance sector. In acknowledgement of the pivotal role for insurance in managing healthcare costs, promoting efficient resource allocation, and ensuring optimal
Published on: 15 June 2023
MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 MENA Organization for Rare Diseases announces the third annual meeting, MENA Organization for Rare Diseases Annual Meeting Exhibition 2024 that will be held in Movenpick Grand Al Bustan Dubai from 1 to 4 February 2024. This conference will be the largest event for rare diseases in the region and will last for 4 days during which experts will deliver the most updated knowledge in presentations, workshops, and group meetings related to rare diseases in various medical fields including neurology, oncology, ophthalmology, dermatology, genetics, metabolic, surgery, cardiology, pulmonary, endocrine, and pediatrics. In its third cycle the conference will put special emphasis on the utility of artificial intelligence in rare diseases, recent research in the field of rare diseases, regional experience and achievements in rare diseases, medical and supportive services for people with
Published on: 1 June 2023 Source: accessabilitiesexpo.com & thewondermom.club & www.worldbusinessoutlook.com & www.edarabia.com & kindcongress.com & www.ladyleadmag.com & intlbm.com & hospitalsmagazine.com & healthmagazine.ae & www.edarabia.com
Rare Diseases in the MENA Region People with rare diseases face significant challenges that arise from the infrequency of their medical conditions, such as limited knowledge about their diseases, long diagnostic journey, and inadequate clinical management and support. A disease is considered rare if it has a prevalence of less than 1 in 2000. Recent studies indicate that there are more than 10,000 different rare diseases. Although they are uncommon individually, collectively they affect more than 5% of the population. The Middle East and North African (MENA) region include 24 countries with an area of 15 million square kilometers and more than 600 million population. This region shares cultural factors causing higher prevalence of rare diseases such the common practices of large family size, high maternal and paternal age, and high consanguinity rates. MENA Organization for Rare Diseases was established in Duba
Published on: May 2023 Source: accessabilitiesexpo.com
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MENA Organization for Rare diseases in AccessAbilities Expo 2023 MENA Organization for Rare diseases will participate as partner and exhibitor at the AccessAbilities Expo that will be held in Dubai World Trade Center from 9 to 11 October. AccessAbilities Expo is the largest event for people of determination in the Middle East, Africa, and South Asia region. AccessAbilities Expo is the region’s leading platform to showcase the latest global innovations that can benefit people of determination to live more productive, independent, and fulfilling lives. Apart from a wide-ranging selection of the latest products, services, and ideas from across the globe, AccessAbilities Expo features dedicated platforms for the whole community to come together, including disability sports, medical services, arts and crafts, conferences and seminars, daily raffles, workplace inclusion, advanced technology platforms, and social events. AccessAbilities Expo is held
Published on: 31 May 2023
The participation of MENA Organization for Rare Diseases at the PrecisionMed Exhibition and Sumit MENA Organization for Rare Diseases has participated at the PrecisionMed Exhibition and Sumit (PMES) as knowledge Partner and exhibitor. PMES was held in Dubai World Trade Centre from 23 to 24 May 2023. Being a Knowledge Partner, MENA Organization for Rare Diseases supported the PMES by sharing knowledge and experience related to rare genetic diseases in the MENA region. The organization also had a booth in the exhibition area which allowed the organization’s team to communicate directly with the attendees and other exhibitors. The PMES gave a unique opportunity for MENA Organization for Rare Diseases to present its activities related to education and spreading knowledge about rare diseases, connect with healthcare providers, companies, and other organizations to exchange knowledge and experience, and learn the recent updates in the field of precision medicine. The PMES was a v
Published on: 29 May 2023
MENA Organization for Rare Diseases launches an educational YouTube channel MENA Organization for Rare Diseases has taken a significant step forward its mission to educate and spread knowledge about rare diseases by starting the YouTube channel: https://www.youtube.com/@MENARareDiseases This channel is designed to be a rich repository of educational material, knowledge, and advocacy for rare diseases. One of the key features of the YouTube channel is the vast collection of over 70 lectures from the conference the MENA Organization for Rare Diseases Annual Meeting 2023, that was held in Dubai from 3 to 5 March 2023. These lectures, delivered by experts in the field of rare diseases, provide invaluable insights into various rare diseases, current research, advancements in treatments and diagnosis, and available services for rare diseases. This platform will not only raise awareness about rare diseases but also serve as a comprehensive resource for patients,
Published on: 20 May 2023
MENA Organization for Rare Diseases participation at the 3rd MENA Metabolic & Genetic Conference MENA Organization for Rare Diseases supports rare diseases in the in the region of Middle East and North Africa (MENA). Spreading knowledge and increasing awareness are major goals for the organization that can be achieved by supporting scientific conferences focusing on rare diseases in the region. MENA Organization for Rare Diseases has participated in the 3rd MENA Metabolic Genetic Conference that was held between 4 and 6 May 2023 in Muscat, Oman. MENA Organization for Rare Diseases was a strategic partner supporting the MENA Metabolic Genetic Conference by sharing knowledge and experience related to rare genetic diseases in the MENA region. The organization also had a booth in the exhibition area which allowed the organization’s team to communicate directly with the attendees. In addition, Professor Ayman El-Hattab, Founder and President of the MENA Organization for Rare Dis
Published on: 8 May 2023
International Autism Conference hosted in Dubai – ICAN 2023 To mark the world autism awareness month in April, Autism Connect Organization along with Senses Residential and Day Care for Special Needs, in partnership with MENA Organization for Rare Diseases, has hosted a unique international autism conference in Dubai for parents and professionals. The International Conference for Autism and Neurodevelopmental Disorders – ICAN Dubai 2023, a three-day event took place at JW Marriott Marquis Hotel Dubai from 28th – 30th April 2023. The purpose of the ICAN conference is to facilitate exchange of ideas and clinical results between professionals to better the care for the people on the Autism Spectrum. At ICAN the newest and the latest development research happening all over the world and all the newer treatments for Autism were discussed. Over 90 international and regional speakers participated in the conference to share best practices and ef
Published on: 4 May 2023 | Source: thewondermom.club
MENA Organization for Rare Diseases receives Appreciation Award at the ICAN Conference MENA Organization for Rare Diseases participated as a Strategic Partner at the International Conference for Autism and Neurodevelopmental Disorders (ICAN) that was organized by AutismConnect in Dubai from 28 to 30 April 2023. ICAN was a unique autism conference for parents and professionals at which the latest advancements about autism were discussed. The conference had more than 75 speakers and it was a special opportunity to exchange medical knowledge between professionals and parents to better the care for people with autism. MENA Organization for Rare Diseases supported ICAN with organization and sharing knowledge and experience related to rare genetic diseases in the MENA region. MENA Organization for Rare Diseases had a booth in the exhibition area and got the opportunity to communicate with participants who have children with autism and rare diseases to hear their stories and
Published on: 3 May 2023
The 3rd MENA Metabolic & Genetic Conference is supported by the MENA Organization for Rare Diseases MENA Organization for Rare Diseases has signed an agreement with Maarefah to support the 3rd MENA Metabolic Genetic Conference as a Staregic Partner. The 3rd Annual MENA Metabolic and Genetic Conference will be held on 04-06 May 2023 at Hormuz Grand Hotel, Muscat, Oman. The Conference will be a comprehensive three-day-event with symposiums, medical exhibition, and workshops, aiming to discuss the most up-to-date scientific discoveries and practices in the field of Metabolic and Genetics. This Conference will bring together international and regional expert faculty members and distinguished research scholars across the MENA region, who are involved in the field of metabolic and genetics. The scientific conference will include plenary sessions, oral presentations, and interactive workshop sessions to give participants the chance to exchange knowledge and experience aiming to advan
Published on: 14 April 2023
MENA Organization for Rare Diseases supports the ICAN Conference as a Strategic Partner MENA Organization for Rare Diseases has signed an agreement with AutismConnect to become a Strategic Partner at the International Conference for Autism and Neurodevelopmental Disorders (ICAN) that will take place at JW Marriot Marquis Hotel, Dubai, UAE from 28 to 30 April 2023. ICAN is a unique autism conference for parents and professionals at which the newest and the latest development research about autism will be discussed and the final beneficiaries will be the children on the autism spectrum. ICAN will be held on 29th and 30th of April 2023 and pre-conference workshop will be held on 28th April 2023. The Keynote speaker will be Temple Grandin who is author, speaker, and autism rights activist. ICAN will be a special opportunity for parents to connect with medical professionals dealing with autism and speak to them on one-on-one basis. The conference will have more than 7
Published on: 13 April 2023
MENA Organization for Rare Diseases becomes a Knowledge Partner at the PrecisionMed Exhibition and Sumit MENA Organization for Rare Diseases has signed an agreement with PrecisionMed Exhibition and Sumit (PMES) to become a knowledge Partner at the coming PMES Conference that will take place in Dubai World Trade Centre from 23 to 24 May 2023. PMES Conference is a platform for knowledge and understanding of the practical application of precision medicine. Through informed presentations and debate, leading speakers will explain the real-world application of genetics and genome-based systems and the movement toward customized healthcare with potential for tackling disease and benefiting patients. PMES Conference will be running concurrently with the EMERGE 2050 forum which will connect technology disruptors at startup and scale up stage with the capital and partnering needed to take projects to fruition. It will also address the potential held by digital and telehealth in mitigating
Published on: 11 April 2023
MENA Organization for Rare Diseases and the International Huntington Association join forces in a unique collaboration! In a key breakthrough, the MENA Organization for Rare Diseases and the International Huntington Association signed a memorandum of understanding during the MENA Organization for Rare Diseases annual meeting 2023, March 3-5, Dubai. “The International Huntington Association looks forward to the partnership with MENA Organization for Rare Diseases that will have positive ripple effects for all those affected by Huntington in the region”, says President of the International Huntington’s Association Svein Olaf Olsen. Under the collaboration agreement, two organisations will be established to look after Huntington’s disease – the MENA Huntington Disease Association for patient and families – and an organisation to develop professional expertise related to Huntington’s disease. The professional organisation will be named MENA Huntington Disease Network and will be led by Professor Pier
Published on: 10 March 2023 Source: huntington-disease.org
3billion won first place in MENA organization for rare diseases annual meeting 2023 CEO Changwon Keum presented 3billion’s AI-based genome interpretation and diagnosis system at the annual meeting of ‘MENA Organization for Rare Diseases’ . held in Dubai, UAE, from March 3rd to 5th. His presentation placed first in the oral presentation competition.
Published on: 06 March 2023 Source: 3billion.io
Loulou Foundation receives prestigious NODRA award at the MENA Rare Diseases Annual Meeting. Shaikh Nahayan Mabarak Al Nahayan, UAE Minister of Tolerance and Coexistence and patron of the MENA Rare Diseases Annual Meeting 2023, presented the Outstanding Achievement for Rare Diseases Award (Nodra Award) to the Loulou Foundation for its advancement of research into rare diseases and genomic medicine. Majid Jafar, Co-Founder of the Loulou Foundation, said: “The Loulou Foundation is honoured to receive this award at the MENA Organisation for Rare Diseases Annual Meeting. This important conference is a testament to the UAE’s support for patients with rare diseases and their families. With advances in research and genomic medicine, more advanced treatment options are now becoming a reality. And through collaborations with governments, private and public sectors and bringing international experts together, we pave the way towards improving patient outcomes and future prospects for
Published on: 6 March 2023 | Source: gulfnews.com
Loulou Foundation honoured with the NODRA Award at the MENA Rare Diseases annual meeting Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence and patron of the MENA Rare Diseases annual Meeting 2023, presented the ‘Outstanding Achievement for Rare Diseases Award’ (Nodra Award) to the Loulou Foundation for its advancement of research into rare diseases and genomic medicine.
Published on: 6 March 2023 | Source: www.khaleejtimes.com
Nahyan bin Mubarak opens the MENA Organisation for Rare Diseases Annual Meeting 2023 in Dubai DUBAI, 5th March, 2023 (WAM) – Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence, opened on Saturday the MENA Organisation for Rare Diseases Annual Meeting 2023 in Dubai. Co-organised by the MENA Organisation for Rare Diseases and UAE Genetic Diseases Association, the three-day medical gathering is assembling 500 specialists and 100 speakers from 18 countries who will deliver the most updated knowledge in presentations, symposiums, and workshops related to rare diseases in various clinical fields including cardiology, pulmonary, neurology, oncology, metabolic, endocrine, pediatrics, and genetics. The largest event for rare disease in the region will also emphasise on research, achievements, and latest advancements in diagnostics and therapeutics in rare diseases. The meeting will present awards to the best submitted abstracts, and several other awards.
Published on: 5 March 2023 | Source: wam.ae
Nahyan bin Mubarak opens MENA Org. for Rare Diseases Meeting 2023 Sharjah 24 – WAM: Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence, opened on Saturday the MENA Organisation for Rare Diseases Annual Meeting 2023 in Dubai. Co-organised by the MENA Organisation for Rare Diseases and UAE Genetic Diseases Association, the three-day medical gathering is assembling 500 specialists and 100 speakers from 18 countries who will deliver the most updated knowledge in presentations, symposiums, and workshops related to rare diseases in various clinical fields including cardiology, pulmonary, neurology, oncology, metabolic, endocrine, pediatrics, and genetics. The largest event for rare disease in the region will also emphasise on research, achievements, and latest advancements in diagnostics and therapeutics in rare diseases. The meeting will present awards to the best submitted abstracts, and several other awards. Organisers sa
Published on: 5 March 2023 | Source: www.sharjah24.ae
Nahyan bin Mubarak opens the MENA Organisation for Rare Diseases Annual Meeting 2023 in Dubai DUBAI, 5th March, 2023 (WAM) – Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence, opened on Saturday the MENA Organisation for Rare Diseases Annual Meeting 2023 in Dubai. Co-organised by the MENA Organisation for Rare Diseases and UAE Genetic Diseases Association, the three-day medical gathering is assembling 500 specialists and 100 speakers from 18 countries who will deliver the most updated knowledge in presentations, symposiums, and workshops related to rare diseases in various clinical fields including cardiology, pulmonary, neurology, oncology, metabolic, endocrine, pediatrics, and genetics. The largest event for rare disease in the region will also emphasise on research, achievements, and latest advancements in diagnostics and therapeutics in rare diseases. The meeting will present awards to the best submitted abstracts, and several other awards.
Published on: 5 March 2023 | Source: www.fananews.com
Veritas will participate in the MENA Organization for Rare Diseases Annual Meeting to be held in Dubai from March 3 to 5 Veritas will participate in the event, where it will showcase its advanced diagnostic and genetic counseling portfolio that allows the identification of rare diseases from the most appropriate medical approach. 300 million people in the world live with a rare disease, which accounts for 5% of the European population and is estimated to affect 3 in every 10 pregnancies. Newborn genetic screening is key in the early diagnosis of a rare disease, taking into account that 75% of patients are children, and that the average time to diagnosis is 4 years, this period increasing to 10 years for 20% of patients. The Veritas genetic diagnostic portfolio is based on whole exome or genome sequencing, which is of great interest in the case of patients with complex medical history or symptoms suggestive of genetic disease, even where other tests have produced negative results. Veritas will
Published on: 3 March 2023 | Source: www.veritasint.com
MENA Organization for Rare Diseases Annual Meeting 2023 MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will be held in Mövenpick Grand Al Bustan Dubai from 3 to 5 March 2023. During this three-day conference, experts will deliver the most updated knowledge in presentations and workshops related to rare diseases in various medical fields such as neurology, cardiology, pulmonary, nephrology, endocrine, hematology, oncology, genetics, and ophthalmology. The meeting will also give opportunities for researchers to present their research in the field of rare diseases. The meeting will also present several awards. More than 100 speakers will participate and the conference with include more than 120 presentations, workshops, and family meetings. Our target audience will include physicians and other healthcare providers who practice in Middle East and North Africa (MENA) region a
Published on: 2 March 2023 Source: www.rarediseaseday.org
MENA Organisation for Rare Diseases Annual Meeting to be held in Dubai DUBAI, 22nd February 2023 (WAM) -- The MENA Organisation for Rare Diseases Annual Meeting 2023 will be held in Dubai from March 3rd to 5th March, 2023. Organised by the MENA Organisation for Rare Diseases and the UAE Genetic Disease Association, the conference is endorsed by the Ministry of Health and Prevention, the Ministry of Community Development, Dubai Health Authority, Emirates Health Services, and Sheikh Zayed Genetic Research Centre; in addition to partnership with more than 100 entities involved in rare diseases. The organising team had an official visit to the patron of the conference, Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence, and the president of UAE Genetic Diseases Association, and briefed him about the goals and relevant details of the event. Chaired by Professor Ayman El-Hattab, the president of the MENA Organisation for Rare Dise
Published on: 23 Feburary 2023 Source: wam.ae
Dubai to host MENA Organisation for Rare Diseases Annual Meeting 2023 The MENA Organisation for Rare Diseases Annual Meeting 2023 will be held in Dubai from March 3rd to 5th March, 2023. Organised by the MENA Organisation for Rare Diseases and the UAE Genetic Disease Association, the conference is endorsed by the Ministry of Health and Prevention, the Ministry of Community Development, Dubai Health Authority, Emirates Health Services, and Sheikh Zayed Genetic Research Centre; in addition to partnership with more than 100 entities involved in rare diseases. The organising team had an official visit to the patron of the conference, Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence, and the president of UAE Genetic Diseases Association, and briefed him about the goals and relevant details of the event. Chaired by Professor Ayman El-Hattab, the president of the MENA Organisation for Rare Diseases; and Dr. Maryam Mater, the
Published on: 23 February 2023 | Source: focus.hidubai.com
MENA Organization for Rare Diseases Annual Meeting 2023 In the presence and under the patronage of His Highness Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence, the MENA Organization for Rare Diseases Annual Meeting 2023 will be held in Dubai from 3 to 5 March 2023. The meeting is endorsed by Ministry of Health, Ministry of Community Development, Dubai Health Authority, and Emirates Health Services. The Conference Chairman is Dr. Ayman El-Hattab, Professor at University of Sharjah College of Medicine, and Consultant Clinical Genetics. The conference will be the largest event for rare disease in the region and will last for three days during which more than 100 speakers will deliver the most updated knowledge in presentations, symposiums, and workshops related to rare diseases in various clinical fields. The conference will also emphasize on research, achievements, and latest advancements in diagnostics and the
Published on: 12 January 2023 | Source: thewondermom.club
MENA Organization for Rare Diseases Annual Meeting 2023 MENA Organization for Rare Diseases Annual Meeting will take place in Dubai from 3 to 5 March 2023. During this meeting, experts will deliver the most updated knowledge in presentations and workshops related to rare diseases in various medical fields such as neurology, cardiology, pulmonary, nephrology, endocrine, hematology, oncology, genetics, and ophthalmology. The meeting will also give opportunities for researchers to present their research in the field of rare diseases. Individuals affected with rare diseases and their families will also participate by attending lectures, having discussion with experts in rare diseases, and joining family group discussion. Laboratories, pharmaceutical companies, clinics and hospitals, academic institutions, and support and advocacy groups focusing on rare diseases will also participate through booths, symposiums, and workshops. Our goal is to brin
Published on: 1 January 2023 | Source: huntington-disease.org
Rare Diseases Annual Meeting 2023 In the presence and under the patronage of His Highness Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence the president of UAE Genetic Diseases Association, the MENA Organization for Rare Diseases Annual Meeting 2023 will be held in Dubai from 3 to 5 March 2023. This meeting will be the largest event for rare diseases in the region with more than 100 speakers. During this three-day meeting, experts will deliver the most updated knowledge in presentations and workshops related to rare diseases in various medical fields. The conference will particularly emphasize the latest advancements in research, therapeutics, and diagnostics related to rare diseases. In addition to healthcare providers, students, and researchers; individuals with rare disease and their families will participate by attending presentations, workshops, and meetings of families with rare disease
Published on: 1 January 2023 | Source: www.vydya.com
MENA Organization for Rare Diseases (MORD) Annual Meeting 2023 Meet us at the MENA Organization for Rare Diseases (MORD) Annual Meeting in Dubai from March 3-5 to get insights into the latest advancements in the the rare disease field. This three-day meeting is the largest event for rare diseases in the region, with more than 100 speakers. Experts from around the world will be presenting the most up-to-date knowledge and holding workshops alongside rare disease patients, laboratories, pharmaceutical companies, clinics and hospitals, academic institutions, and support and advocacy groups. The ultimate goal of this meeting is to bring together all parties involved in rare diseases to connect and exchange knowledge – aiming to increase awareness and provide better care for rare disease patients. Don’t miss the chance to see Dr. Jorge Pinto Basto, Senior Medical Director at CENTOGENE, as he presents the diagnostic power of our multiomic solutio
Published on: 1 January 2023 | Source: www.centogene.com
MENA Organization for Rare Diseases Annual Meeting 2023 In the presence and under the patronage of His Highness Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance and Coexistence the president of UAE Genetic Diseases Association, the MENA Organization for Rare Diseases Annual Meeting 2023 will be held in Dubai from 3 to 5 March 2023. This meeting will be the largest event for rare diseases in the region with more than 100 speakers. During this three-day meeting, experts will deliver the most updated knowledge in presentations and workshops related to rare diseases in various medical fields. The conference will particularly emphasize the latest advancements in research, therapeutics, and diagnostics related to rare diseases. In addition to healthcare providers, students, and researchers; individuals with a rare disease and their families will participate by attending presentations, workshops, and meetings of families with rare disea
Published on: 1 January 2023 | Source: kindcongress.com
MENA Organization for Rare Diseases Annual Meeting The MENA Organization for Rare Diseases Annual Meeting will be held in Dubai from 3 to 5 March 2023. This conference will be the largest event for rare disease in the region. MENA, an acronym in the English language, refers to a grouping of countries situated in and around the Middle East and North Africa. The main goal of this conference is to bring all parties involved in rare diseases in one place to exchange knowledge and increase awareness about rare diseases. MENA Organization for Rare Diseases was established to serve and support people with rare diseases in the region of Middle East and North Africa (MENA). People with rare diseases and their families face many difficulties because of the scarceness of knowledge about these conditions and limited support available for them. The goals of MENA Organization for Rare Diseases are to educate, connect, and support. First, the
Published on: 1 January 2023 | Source: www.worldduchenne.org